So, I left you, all of a few days ago, in deep despair over the
news of my son. His cancer was back, in the brain and it was terminal. Since
that post, my husband and I had to share some of the most difficult moments anyone
has to face. We began planning our precious boy’s funeral. We were waiting for our
initial meeting with HOSPICE and I began writing his eulogy.
After the initial shock of this horrendous news, my family ran away for a
few days down to the Jersey shore. We had not been away together for 15 months
due to the cancer treatment schedule my son had to endure and this place was
where we always found our respite. This was our happy place. But even this
place did not hold enough magic to dissipate the fog of despair that we brought
with us. We knew, that upon our return, our boy would under go a PET scan to find
out where this insidious disease had spread to. This was to help the doctors figure out how best to alleviate any pain that would arise in the different parts of his body.
I had taken to saying a daily rosary early on in my son's illness, but I
must admit, over the last few months, I had slacked. I had not been AS diligent
as I once was. My schedule had dramatically changed and with that, I allowed
myself to get lazy about my prayer life. It was my excuse of course. Well, as
one could imagine, as soon as I heard the newest information about my son, it all changed. I
felt horribly guilty as if I betrayed my friends, Mary, the saints & of
course God by now returning to them, in such a horrible time of need &
begging for my child’s life. I pleaded for forgiveness, guidance, discernment
and of course, a miracle of healing.
The burden of misery was so heavy. As each day passed, I began to wrap my
head around the concept that soon, I would not have my little boy around us for much
longer. Somehow, I began to feel more and more at peace knowing that he was
going straight to Heaven. Now it would be my sole mission to work at
getting me and my family members there so we could be together again.
I had come to a place where I was talking openly with my children about our
human passing and our goal at reaching Heaven and how it was imperative that it
always remain our main focus in life. I was thinking that I should use every
moment of this human pain to try and do something good with it...like help
teach my other child that this WHOLE journey of life comes down to this moment.
The moment of our death & it is what we do on Earth that is our preparation
for it. My six year old took to talking about what he was going to do when he
reached Heaven pretty regularly and each time he discussed it I thought my knees
would give out from under me. I was only
standing by the grace of God.
The hospital staff & social workers rushed to fulfill my son’s “Make a
Wish” dream trip to Disney World.
It was originally planned for late August, thinking he’d be well
past chemo treatments and hopefully feeling great so we could use the week as a
long awaited celebration for him. Now, they planned it in 3 days & we were due
to leave by the end of the week. With fake smiles, it would be our “last hurrah” as a family of four. The dread was
overwhelming. Each day seemed like a year.
My parish community was, as always, just tremendous. There was a prayer service held every other
night it seemed, to say the rosary for a complete healing of our boy. I was actually able to attend a few of them and
the sorrow these people felt for our family, the outpouring of kindness and generosity,
it truly was comforting and nothing short of amazing. It made me so happy to be Catholic and part
of such a phenomenal community.
Once again, I found myself begging people for their prayers. If I saw a Nun in habit, I would walk up to
them,hand them my son’s name on a scrap of paper and ask for prayers. I e-mailed and Facebooked my son's story into gaining a
million prayers in his name, I think. Heck,
you know …I reached out to all of YOU as well.
So, we returned home from our quick jaunt to the shore last Sunday. Monday, at 8AM my son was due in for his PET
scan. If you are not familiar with all
of the medical jargon, God bless you, I wish you never have to learn but…a PET
scans only job is to identify cancer cells in the body. It cannot detect cancer in the bone or blood
but it will light up ANY areas in the body cavity that have cancer. I had asked
someone at the hospital if this test was one my son had to fast for. It is hard asking a 6 year old not to even
drink a glass of water until the test is done although sadly my little guy
knows this drill all too well. They told
me “no” so this was as slight relief.
We
keep candy around our house now at all times, it is PURELY for bribing purposes. It is the easiest AND ONLY method of getting him
to take any of his oral medicines. So I threw a 2lb bag of peanut M&M’s
into my bag the morning of the test KNOWING I was going to need to bribe him at
some point in time during that day. We arrived for our test and they gave me a contrast drink for my boy
to consume. This is a NASTY experience
for an ADULT to endure, let alone a six year old. SO as he cried, I begged, cajoled and bribed him
to drink this substance with said M&M’s.
After a few gulps, and an hour of debate he finally put his foot down
and absolutely REFUSED to drink this horrible concoction. I sheepishly went
back to the nuclear medicine folks & told them our predicament. Much to my chagrin, they said it was fine, that they would do the scan without it??!!
If I had KNOWN, my poor little guy wouldn’t have gone through such drama
and well….sigh…what was done, was done. We got to the next stage of his
testing when the technician asked “So, Nothing to eat or drink today, RIGHT?” I
had to explain that had eaten and it was about 20 M&M’s while I was
bribing him to consume the nasty drink that he didn’t have to take in the first
place…UGG! We were sent home only to reschedule our appointment for two days
later, sure enough, this WAS a test that needed to be fasted for. What a comedy of
errors!
That morning, on the way to the hospital, I had dropped my daughter at a dear
friend’s house. She
handed me a precious item of hers. It
was a relic of St. Elizabeth Ann Seton.
Oddly enough, this friend’s own daughter, at the age of 3 AND 5, beat a rare childhood
cancer TWICE! She explained that the relic was truly miraculous and had
helped many people in her life. Now she was loaning it to my boy, we are truly blessed. When I finally made
it back to this friend’s home to pick up my daughter and explained my screw
up at the hospital, she laughed and said “No worries, it gives us one more day
to pray for that miracle."
So Monday was
my screw up, Tuesday there was yet another prayer service to say the rosary for
a healing which I was glad I was able to attend. Afterwards,
people were approaching, asking all kinds of questions and I explained “I keep praying for a healing miracle
BUT I’d even take just a new treatment regime that could give us a SHOT.” when a friend approached and said “Are you
KIDDING? What we are praying for here tonight is a complete healing! We are praying for that PET scan tomorrow to
come back clean!” and I thought to myself, "Yes…why not? Why can’t my son be like the woman who touched
Jesus’ cloak?” I have that faith in Him!
My son has that faith in Him! My son can absolutely be healed. Do you all remember just a few entries ago,
before I even KNEW about my son’s newest condition and how I said I began to
CRY at Mass when hearing that Gospel story??
I all of a sudden got a HUGE sense of renewed strength. I started thinking about how Satan was using
my weakness, my despair and how he was so badly wanting me & my family
to break and turn from God at this moment.
He was preying on our human frailties and I felt like I was no longer in
a medical fight. This was spiritual warfare now. Science no longer could help my boy OR my family. This now was a battle of who was going to get
my family’s souls. My son, his battle
was won…but I could not foresee my daughter & husband’s path in
life. Would this experience mentally
scar my daughter? Would she grow angry
and leave her faith one day? Would my husband
grow bitter with the world, become despondent and lose HIS faith? These were the things that plagued me. I went home that night and spoke to God,
begging him to let this small child who brought so much light to so many be a
beacon, be a sign, to all who meet him or hear about him. May he be a person to draw people closer to
the Lord because of his story. Let my family be faithful servants
and a witness to your goodness and use us as vehicles to bring people back to
the one, true, faith in this time when the world so badly needs
conversion.
Right before my son’s PET scan the next morning, in the hospital, I
Consecrated him to Mother Mary and said one final rosary beside him. I stood
over him while I desperately spoke to God again and said “Dear God, if it is
your will to take my son, it will happen no matter what happens in this test today. Please just give my family the strength to
survive and remain in your light.” My heart was at peace. I no longer felt the dread and the threat of
chaos that had consumed my mind as of late.
My focus was crystal clear. This
test would tell how severe my son’s cancer was and where in the body it was
located. After the test, we were to head
over to the children’s oncology clinic to meet with my boy’s Oncology team & MAYBE
get some preliminary results back on this PET.
So we did just that. We decided to stick around for a little bit to get whatever news we could.
The top doctor came into the room, sat down and said “Liz, tell me about
your son’s head trauma.” My mind raced…”What?
What are you suggesting doctor?” I stammered. He said "You mentioned to us when we FIRST
heard this news that your son hit his head weeks ago…tell us that story again because the
PET scan is showing NO CANCER, anywhere in his body. The Spinal tap results are back from the lab
& they are showing NO CANCER cells in the spinal fluid BUT they are showing
large amounts of OLD blood…when did he hit his head again? We think what showed up on the MRI is
evidence of head trauma.”
We are in Disney as I write this to you CELEBRATING LIFE...what say you?
Hopefully, this page will assist people in realizing how we can all grow deeper in our Catholic faith. I will cram this page with all kinds of: current events, news, data and doctrine on the Traditional Catholic faith and every so often my own ramblings. I will always attempt to bring you accurate, correct information and if my opinion is not your cup of tea, feel free to share your comments as long as they are respectful! Come find "God's Interruption" on Facebook as well...God bless you.
About Me
"Not 100 people in the United States hate the Roman Catholic Church, but millions hate what they mistakenly think the Roman Catholic Church is.” - - Bishop Fulton J. Sheen
1 comment:
What say I???!!!! Oh my gosh, LIZ!!! I am speechless with wonder right now! Enjoy your Disney Trip!
Amazing.
God is good.
Post a Comment